In Your Own Words

Every person with misophonia has a story to tell! This page provides you with an opportunity to share yours.
This site’s visitors are interested in hearing about your history with misophonia, your successes or frustrations, and your suggestions for coping with the disorder. Any facet of how misophonia affects your life is an appropriate topic to share. This page allows comments and leaving a comment is one way to share your story. Another way is to send your story to paul.dion@misophonia.com and have it published here. These detailed stories can be very helpful to spread awareness of this sound sensitivity. There is no minimum or maximum length requirements for publication.

Because of privacy issues, we do not recommend including any personal information in your story. By leaving your story in a comment below or sending it to Paul Dion, you agree that your story becomes the property of Misophonia Online. Submissions may be proofed, edited for clarity, and may be modified to keep in line with the website’s focus and goals. If your comment/submission/story is used elsewhere on this site or reproduced in any manner such as being used in the Facebook Misophonia Support Group, or any other misophonia project, it will NOT include any personally identifiable information that you may have left in your original submission or comment.

 




PERSONAL STORIES:

Rachel Barley

Writers are always welcomed. If telling your story here has inspired you to expand your story into an article, click or tap the image above to visit the Opinions page.

1 Comment

  1. I don’t remember exactly when it started, but it wasn’t always a problem. I believe it began to escalate when I was about 10 or 11. Sitting at the dinner table or even watching tv with people while eating was excruciating. As I got older it was more rage inducing than irritating. I would burst out upset with my family for things that they weren’t doing on purpose; things that were unreasonable to ask them not to do. They couldn’t understand what was wrong with me and I generally ended up alone in my room because my irritation cause them to be upset with me. A few times as a child I tried so hard to control myself I would bite down on my hand. It didn’t suppress any emotional pain and resulted in biting down so hard that I bled. Eventually the rage I felt and the reaction I got from my family actually got worse and panic began to follow the rage as I was understand there was nothing to stop the distress I was in and no one to understand what I was feeling. I’d say I’ve been dealing with this for about fifteen years and only in the past couple have I even happened upon the word Misophonia. I am married now and it affects interactions between my husband and me every single day. He tries his hardest to be understand, but to ask someone to not make noise while they chew or not cough or never open a bag of chips is just unreasonable. I haven’t found any way to feel better. I have anxiety and I am (sometimes debilitatingly) obsessive compulsive so I’ve been on anxiety medication but nothing has changed with regard to the Misophonia. I truly feel for anyone dealing with this because it is a lonely illness. To have your quality of life so profoundly impacted by something that no one you love can relate to is painful. I become more and more depressed as the years go on and I find no relief. Please don’t be embarrassed to explain yourself, or to or to show this information to anyone. The loneliness can be the worst part. Don’t let it take your happiness.

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